tag:blogger.com,1999:blog-34081690112318883532023-11-16T07:05:57.225-08:00Mr. LymphomaA Novice Approach to Large B Cell Lymphomapmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.comBlogger75125tag:blogger.com,1999:blog-3408169011231888353.post-85012445108726481832012-08-17T08:21:00.000-07:002012-08-17T08:21:24.608-07:00RIP DadJust realized my last post was 12 AUG 2012 at 3pm. Little did I know he had so few hours left. He never woke up that afternoon. The last meaningful conversation with him occurred after a long sleep. Longer than any in his adult life; he passed his "light sleeper" gene to all three of his kids. I heard voices at 3am early in the morning and, knowing he was in good hands with my brother and my wife, tried to go back to sleep. I tossed and turned and finally sauntered out of bed at 4am asking, "how's he doing?" I looked over to him as he opened his eyes and gave me a little nod. I moved to his side, flipped the cool washcloth on his forehead and told him to go to sleep. "Okay" Seven hours later, Laurie and I started to rub his feet and his hands, he woke with a start and looked around wildly as if he was surprised to see us. My mother moved to his side and he desperately hugged and kissed her exclaiming, "I can't wake my body up." We assured him he was still here and helped him move his limbs and rubbed his back. I tactfully said, "You were dead asleep." He chuckled, "Almost!" We gave him some water and he asked for some oatmeal. Pretty soon he was tired again and he went into a deep, final sleep. We called the hospice nurse that night and she did a once over. The nurse reviewed any questions we had in the kitchen with my sister and mother and she left just after 10pm. My nephew was counting his heart beats and stated that the last minute was 6 beats. We all rushed to his side and lovingly whispered him off at 10:20pm on Sunday night, August 12th.<br />
During the last week, many people who were touched by his generous nature have provided so many kind words as we have reminisced with friends and family.<br />
He was a great guy and an inspirational father.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com5tag:blogger.com,1999:blog-3408169011231888353.post-15564265020452933752012-08-12T15:22:00.002-07:002013-03-11T14:25:24.859-07:00sad newsAlthough my stinking cancer remains at bay, I received a call a little over a week ago from my mother saying that she had admitted my father into the hospital with a swollen leg and shortness of breath. He has been complaining of fevers and sweats since January but he has always been hot blooded so this wasn't terribly shocking. The swollen leg in the last month was a problem, that could have been a blood clot, so all the tests were conducted. To make an agonizing, 7-day wait shorter for you, he has Large B Cell Follicular NH Lymphoma with a side of Burkitts Lymphoma. Unfortunately, they have found cancer in his spinal cord, bone marrow and the dialysate they drew off of his now non-functioning kidneys.<br />
Another long story short, we brought him home to hospice last night and have started the process of ushering him away. Very sad.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-44345999856383795982012-03-20T14:38:00.003-07:002012-03-20T14:59:23.057-07:00Another UpdateSo I forgot about the last post in my draft folder for a couple of months.<br />A quick update is in order.<br /><br />First, I should note that when I was first diagnosed, I was sad to see a flurry of posts by fellow travelers on the NHL journey hoping to mine any data about relapse, long-term effects and just a general outcome. I was <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">desperately</span> searching for success stories. I sadly have forgotten one poster who was leaving his blog up but wrote a final post that he would no longer update it as he didn't want to define himself by his cancer. At the time, I felt a little shorted but now, I understand this view. I catch myself every couple of weeks remembering hurdles in my treatment, conversations I had with well wishers, contacts I made with old friends and the worry for the future of my family.<br />Now it is just a memory that I must revisit every couple of months during my scheduled updates with my new <span id="SPELLING_ERROR_1" class="blsp-spelling-error">Onc</span>.<br /><br />I had a <span id="SPELLING_ERROR_2" class="blsp-spelling-error">petscan</span> a couple of weeks ago and everything is back to normal. NED. It felt so routine and i am happy that the CT scans are history.<br />Still relatively primal and working out a couple of times a week. My shoulder is still wonky so I am limited but not enough to undergo surgery which would have happened if we stayed in Michigan. The shoulder is actually getting better I think with a gentler approach to lifting - no longer doing full body weight pull-ups.<br /><br />Turning 48 soon so the prospect of making it this far with a cancer scare and maybe some thinner hair from the chemo is a decent trade off.<br /><br />Had a whirlwind tour of Florida as a weekend celebration for my 25<span id="SPELLING_ERROR_3" class="blsp-spelling-error">th</span> wedding anniversary; Sarasota Bay tour with my parents, <span id="SPELLING_ERROR_4" class="blsp-spelling-error">Cavalia's</span> <span id="SPELLING_ERROR_5" class="blsp-spelling-error">Odysseo</span> in Miami, overnight and an exciting day with friends on Little Torch Key and back to Wellington. Lots of miles...exhausted but certainly glad to be alive.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-57403282218162261002011-11-14T10:29:00.001-08:002012-03-20T14:38:03.159-07:00The South<div>For those of you following my NHL Adventure, we buttoned up shop, sold most of our goods and the farm/business in Lowell, Mi and are now settling in near West Palm Beach in Wellington, Florida.</div><div>I'm currently on the hunt for a new <span id="SPELLING_ERROR_0" class="blsp-spelling-error">Onc</span> as I'm scheduled for another CT Scan in December which will mark year 3 since diagnosis. No troubles to report at all and my decidedly unoriginal <span id="SPELLING_ERROR_1" class="blsp-spelling-error">LIVESTRONG</span> band will continue to grace my wrist until I'm declared "clean."</div><div>Although there is some discussion about when/if NHL folks can indeed be "cured", my mental mark is 5 years from April '09. As the months roll on, I still wonder about the long-term affects of so much radiation with the ongoing scans. I allowed the <span id="SPELLING_ERROR_2" class="blsp-spelling-error">allopathic</span> method to handle the crisis and have taken a more osteopathic approach on my own which hopefully bolsters the treatment so that I may usher this hiccup into the history books. Yes. No treatment would be the best scenario.</div><div>Filling out the paperwork for the new <span id="SPELLING_ERROR_3" class="blsp-spelling-error">onc</span> has made me relive the parts of chemo process and to marvel at how difficult it is to remember dates and specifics.</div><div>This blog will continue to remind me of those things I am thankfully forgetting.</div><div><< Grin>></div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-21641833148505426822011-08-26T13:28:00.000-07:002011-08-26T14:22:10.410-07:00Another visit<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEildUK75tOMKk72-mK-NxKY8Go7uSs6dYLqX153Sed-EqG55YCQqhL7d0YSYQj-JUItlPo5rmVrZQbLiYvma89QUrCQvWx0iUZdYzIBJMCYBjlJSAB19zGks2e4l_-WykdCOMo801WpSbM/s1600/biology1_clip_image002.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 246px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEildUK75tOMKk72-mK-NxKY8Go7uSs6dYLqX153Sed-EqG55YCQqhL7d0YSYQj-JUItlPo5rmVrZQbLiYvma89QUrCQvWx0iUZdYzIBJMCYBjlJSAB19zGks2e4l_-WykdCOMo801WpSbM/s320/biology1_clip_image002.jpg" alt="" id="BLOGGER_PHOTO_ID_5645273256159530562" border="0" /></a>
<br /><div>The summer started off full of relapse anxiety and has now tapered to a calm cicada buzz. I completed yet another round of CT Scan and review with the <span class="blsp-spelling-error" id="SPELLING_ERROR_0">Onc</span>.</div><div><span style="font-weight: bold; color: rgb(255, 255, 0);">All is well</span>. He stated that the nodes have had no changes and the reviewers did note a small spot on my liver that they attributed to a glitch or a small fatty deposit. I've come to the conclusion that after you have been scanned as many times as I have in the past three years, you are bound to find some nuances.</div><div>On another note, my painful left shoulder has me at wits end. After a few weeks of PT, that only served to aggravate the joint, I paid a visit to a new joint Dr. recruited from the Atlanta area. Seems like a decent dude and he ordered up an MRI.</div><div>Had the MRI on Monday which served as another adventure in medical procedures. My CT Scans are remarkably quick. I'm usually walking out 10 minutes past my appointment time. After quite a delay in the waiting area with other vocally irate patients, a lead covered nurse brought me to the "numbing room" where I put on a gown and a radiologist used a low frequency <span class="blsp-spelling-error" id="SPELLING_ERROR_1">xray</span> to properly insert a needle into my <span class="blsp-spelling-error" id="SPELLING_ERROR_2">glenohumeral</span> joint. These two stay in the room while the <span class="blsp-spelling-error" id="SPELLING_ERROR_3">xray</span> is rolling which is a little strange but their lead lined clothing and throat shrouds bring out a wonderful sci-<span class="blsp-spelling-error" id="SPELLING_ERROR_4">fi</span> thrill. The needle was also used to inject contrast directly into the <span class="blsp-spelling-error" id="SPELLING_ERROR_5">labrum</span>. Although locally numb, the radiologist said, "this will feel like a little bee sting" to which I thought, "What? Bee Stings hurt!" During the burning and anticipated pain, I could still hear the needle squeak into place and relieve the dull pain I have felt for months.</div><div>After staring at the needle sticking out of my shoulder for several minutes, I was deemed ready and the needle was withdrawn. I gathered up my belongings and headed down the corridors to the MRI room. Incidentally, this was right across the hallway from one of my mother's office spaces while serving as an infection control nurse for years at <span class="blsp-spelling-error" id="SPELLING_ERROR_6">Blodgett</span>; a crazy flashback.
<br />The MRI attendants didn't provide much detail about what was to happen. They strapped on a support to keep my shoulder stationary and sent me into the tube with a set of can headphones playing pop music. Although I wasn't claustrophobic, the space was very tight. I tired to relax and started to nod off. Unfortunately, the <span class="blsp-spelling-error" id="SPELLING_ERROR_7">hypnic</span> jerks paid a visit and we had to keep redoing the long scans because I moved. The <span class="blsp-spelling-error" id="SPELLING_ERROR_8">timeframe</span> of the scans was not explained and I had several 5 and 2.5 minutes scans which doesn't seem alarming but I was attempting to take shallow breaths until it became necessary to breathe a little deeper. They would interrupt the sappy beat with a crackle, "please try not to move. We need to do that one again..." or "it's important that you stay very still Paul." When they finally hauled me out, they asked if I would go back in with the left arm over my head for two, 5 min scans. Nada. Hurt to even attempt the position let alone 10-15 minutes worth.
<br />Three hours later I walked out of the hospital with a numb shoulder and lots of catch-up to play. Still awaiting results...
<br /></div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-29182072769281378022011-06-22T11:27:00.001-07:002011-06-22T11:51:53.036-07:00The Next Best Thing to NED<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGUU0WkXyKoUZsRjlVVWOHqlfw0hnem64limVE201mnno6wEqsMmTfzehZ8ClMyOJJxiGp7AYEznNzEHjTZAavgBhvCexsUHE6nccY0wt76DaunuRcSDBXFFV2jnfJFIalJbJDPW0N5QE/s1600/Batman_dodging_Bullets_by_polluxprime77.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 244px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGUU0WkXyKoUZsRjlVVWOHqlfw0hnem64limVE201mnno6wEqsMmTfzehZ8ClMyOJJxiGp7AYEznNzEHjTZAavgBhvCexsUHE6nccY0wt76DaunuRcSDBXFFV2jnfJFIalJbJDPW0N5QE/s320/Batman_dodging_Bullets_by_polluxprime77.jpg" alt="" id="BLOGGER_PHOTO_ID_5621118514422361314" border="0" /></a><br />Inconclusive.<br />Laurie and I joked about this response from the Onc while reviewing how we would react to the PET results. What if he says, "The results are inconclusive". That's rich.<br />Although the radiologist indicated a very small uptake in <span style="font-style: italic; color: rgb(255, 0, 0);">one </span>of my abdominal nodes, it is currently too small to biopsy and could be a false positive on the PET.<br />Overall, the sites of enlargement from my Spring scans have reduced in size which is a great sign.<br /><br />So, where does this leave our hero?<br /><br />They scheduled yet another CT scan for late August and we will go from there. The Onc said that he would have expected to see more site involvement if I was truly relapsed and that we just need to take a "wait and see" attitude for now.<br />I believe the kids call this, "<a href="http://www.fingertime.com/bullettime.php">dodging a bullet.</a>"pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com2tag:blogger.com,1999:blog-3408169011231888353.post-81136076161900110342011-06-21T10:38:00.000-07:002011-06-27T12:57:19.817-07:00PET CT Scan<div><div><div>I learned last week that the PET scan is actually two scans in one tube. The process involves yet another CT scan and the PET portion is attached to the CT; extending the tube about 36". In preparation, I was instructed to follow a strict protein diet 24 hrs before the scan. Those of you who have been following my Primal exploits will understand that this was a breeze. Additionally, I was only allowed water 6 hrs prior to the scan.</div><div>The PET scan involves starving the body of <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">sugar</span> (glucose). They introduce a radioactive, fluorescent glucose solution which any highly active cancer cells immediately draw on for fuel. This consolidation of glucose is then caught with the PET scan using 3D triangulation to determine if you have relapsed.</div><div>I arrived at the <span id="SPELLING_ERROR_1" class="blsp-spelling-error">LHCP</span> with a couple of books, a mix CD with several cuts from the Beach Boys "Pet Sounds"(see previous post) and a few <span id="SPELLING_ERROR_2" class="blsp-spelling-error">CDs</span> just in case the mix disc wouldn't play. <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Ap0hoSrUKy0n0haDY8Z2BRBlVWE2wq4SWXF3ZWQzchhGhVK_Nw_rfb49g8fG4Q-FXt66bpHT0eOgBcUbPF6n_nS42GN1qsf5qn7xSGHUGCclsBeqkuXYxTNTASFejz7MbkHHS3-CeH0/s1600/waiting.jpg"><img style="margin: 0px 0px 10px 10px; width: 320px; height: 191px; float: right; cursor: pointer;" id="BLOGGER_PHOTO_ID_5620767178234490834" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Ap0hoSrUKy0n0haDY8Z2BRBlVWE2wq4SWXF3ZWQzchhGhVK_Nw_rfb49g8fG4Q-FXt66bpHT0eOgBcUbPF6n_nS42GN1qsf5qn7xSGHUGCclsBeqkuXYxTNTASFejz7MbkHHS3-CeH0/s320/waiting.jpg" border="0" /></a>I was escorted to a private waiting room(see image) where Todd, my <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">concierge</span>, explained absolutely everything to me. He wears a radiation ring and a radiation badge that is sent in every month in order to track the amounts of radiation to which he is exposed. This tracks lifetime accumulations and at some level, you may need to find another line of work but so far, his levels are negligible thanks to the protocols they follow. Since this is also a CT scan, he had me drink an alternative to the BS solution I have blogged about previously. This step was much less involved than the normal consumption expectations and he started an IV line that would usher in saline, the radioactive glucose and the contrast solution. Todd also made me aware that during the scan they would play any of my <span id="SPELLING_ERROR_4" class="blsp-spelling-error">CDs</span> or they had access to satellite radio. He was a DJ while in college in Iowa and suggested the station <span id="SPELLING_ERROR_5" class="blsp-spelling-error">FirstWave</span>. Recommendations of books and music are always a welcome surprise and keep me out of my comfort zone.</div><div>Todd also brought in a small lead toolbox containing the glucose. The actual syringe is housed within a thick, tungsten cylinder with the plunger sticking out one side and the IV connection on the other. Todd explained that this cylinder is very difficult to construct due to the material properties of tungsten. This is Iron Man territory.<br /><br /></div><div>Todd tested my glucose level (78...ahem, thank you Primal) and injected the glucose. Now I wait for 90 minutes for the glucose to properly steep. Todd offered me a selection of movies, TV, music or a laptop. Laptop? 90 minutes to browse the Web was an ideal way to dwindle away the time.</div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji6bgO8L8Dg80aJ_CJNt0inbktX-vPvvrMMqhbAnhYxCX4NXqNLDgiimIVV_N20hxMmpdffeq_yukToPR0Un_or97EXddUpImXBMSKaaF9YVM63zS84QQE0_gyG-XF6Fg_mq198FA8-70/s1600/petscan.jpg"><img style="margin: 0px 10px 10px 0px; width: 191px; height: 320px; float: left; cursor: pointer;" id="BLOGGER_PHOTO_ID_5620767397959502978" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEji6bgO8L8Dg80aJ_CJNt0inbktX-vPvvrMMqhbAnhYxCX4NXqNLDgiimIVV_N20hxMmpdffeq_yukToPR0Un_or97EXddUpImXBMSKaaF9YVM63zS84QQE0_gyG-XF6Fg_mq198FA8-70/s320/petscan.jpg" border="0" /></a><div>What seemed like moments later, I was escorted to the scanner (see photo) and asked to relieve myself of any extraneous radioactive glucose (to pee). I then removed all my metal and climbed into the scanner. BTW, this is only one of four in Michigan plus another 2 portable machines. Apparently there were more portable companies <span id="SPELLING_ERROR_6" class="blsp-spelling-corrected">traveling</span> to rural areas of Michigan but their business models collapsed with the ridiculous price of fuel so only two portable PET machines survive.<br /><br /></div><div>They had me hold my arms above my head the whole scan which didn't bode well for the shoulder but I survived. They then added contrast to the IV and that old familiar metallic heat spread through my chest, neck and face. As I entered the tube, <span id="SPELLING_ERROR_7" class="blsp-spelling-error">FirstWave</span> thumped out the <span id="SPELLING_ERROR_8" class="blsp-spelling-error">Clash's</span> "I Fought the Law". The scan took about 20 minutes and as I exited the tube the Pretenders "Don't Get me Wrong" faded from the speakers. I was led back to the room to collect my things and was greeted with a hospitality cart filled with everything I don't eat (see waiting room photo). Damn you Primal.<br /><br /></div><div> </div><div>Results should be ready on Weds during my Noon <span id="SPELLING_ERROR_9" class="blsp-spelling-error">appt</span> with the <span id="SPELLING_ERROR_10" class="blsp-spelling-error">Onc</span>. <span style="color: rgb(255, 0, 0); font-weight: bold;">This is a big one.</span></div></div></div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-38650784738783853742011-06-09T05:57:00.000-07:002011-06-09T08:01:47.252-07:00Three Yawps for Science<div><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrQFO0sFSqg3PWNZmj_NTII-EpKkmMF0tYwBwtn3hmzZu_bVuTutJcMqXALsjk759mf_8iMjbVq73xx6vef1Pq3hurmtwOgyYZTxgjdP7Y1VUcollHzjk2osTSMgksF9v7gJp3p1RrB1w/s1600/pet.jpg"><img style="margin: 0px 10px 10px 0px; width: 300px; height: 300px; float: left; cursor: pointer;" id="BLOGGER_PHOTO_ID_5616234541970399138" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrQFO0sFSqg3PWNZmj_NTII-EpKkmMF0tYwBwtn3hmzZu_bVuTutJcMqXALsjk759mf_8iMjbVq73xx6vef1Pq3hurmtwOgyYZTxgjdP7Y1VUcollHzjk2osTSMgksF9v7gJp3p1RrB1w/s320/pet.jpg" border="0" /></a><div>After visiting with the Onc last week, he felt <span style="color:#ff0000;"><strong>NO</strong></span> external issues (looking for swollen nodes in all the typical locations, even in my guts) and said it would be OK to bump up the CT Scan if I wanted to as the changes would be as apparent now as they would be in 3 weeks. </div><div>As we exited, the receptionist noted my new insurance carrier and that we most likely would be able to scan at LHCP as opposed to my normal routine at Spectrum across the street. She asked if I could come back down in a few hours due to an opening at 1pm. I agreed to the appointment in order to get the results sooner. I had to immediately drink a bottle of the much blogged Barium Sulfate and take a bottle home to consume an hour before the scan. I came back downtown and was out of there within 15mins. Multiple jabs were not required as my veins acquiesced but the IV contrast was much warmer this time around. A polite "good luck" from the tech and I was on my way.</div><div> </div><div>I called the Onc on Tuesday to see if they had results yet and didn't hear back. Wednesday morning I checked my voicemail and the Onc had called late to say we should, "catch up tomorrow". The last time I rec'd a call from the Onc he had nothing but good news so a mysterious lack of info sent a shock wave through me.</div><div>I had a PT appointment for my lingering shoulder pain so the whole drive was nauseating while Diane Rehm's firm, quivering reparte tried to distract me. I felt like I was floating in a quiet, thick, "what the hell" miasma.</div><div>After arriving back home, I called the Onc's office and was told someone would get back to me right away. Laur came in for some lunch and asked if I had heard anything and I relayed the Onc's message from last night. She turned a little pale and had to sit down. As we were discussing all the potential scenarios, the phone rang and the callerID listed, "CANCER AN". I answered with confidence and a nurse explained that there was "minimal enlargement indicated in the scan" they would like to schedule a PET Scan.</div><div>This should be a positive next step as the CT Scans are not able to determine if the enlargement is due to relapse or just normal fluctuation. Keep in mind that in 2005, I had the whole lymph node chain removed from the left side of my neck after an inconclusive needle biopsy found unusual cells; forensics proved the nodes to be benign. The PET will actually highlight overly active cells (cancer cells) in my body using a fluorescent glucose mixture. If it turns out that there are dark spots in some of the lymph nodes, then I suspect that we successfully caught the relapse early and start a plan of attack. If there are no spots, then we might conclude that the enlarged nodes are nothing more than my "cured" body back to normal function.</div><div>Hopefully the new insurance company will see the logic in this step and agree to pay for the scan.</div><div>Should have the scheduled scan date this week. It takes 3-4 weeks to get a scan appointment.</div><div> </div></div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-32901180563126636422011-05-28T17:36:00.000-07:002011-05-28T18:15:59.191-07:00Prednisone<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSmLtUwmk1e_i6zeaIec6B6zuu5Op-vL-oEuOkSEcXbAdtIQiualbW-ls97oGTcLIqslzVBpeE5GWBLEh_QrEOvaaNzDiaskUX5ODv_IRLMOVKwiAruPR4BfL21jcAq7bIG6XrjeYACs0/s1600/cancer-chart.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 299px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSmLtUwmk1e_i6zeaIec6B6zuu5Op-vL-oEuOkSEcXbAdtIQiualbW-ls97oGTcLIqslzVBpeE5GWBLEh_QrEOvaaNzDiaskUX5ODv_IRLMOVKwiAruPR4BfL21jcAq7bIG6XrjeYACs0/s320/cancer-chart.jpg" alt="" id="BLOGGER_PHOTO_ID_5611936497288845426" border="0" /></a>Although my shoulders have been taking a beating from 12 solid months of pull-ups and push-ups to compliment primal changes in my lifestyle, I typically just take a few days off and the pain goes away. About 6 weeks ago, my left shoulder started complaining a lot. I mentioned this to Laur more than a few times until she finally recommended that I go in for a massage to see if that would help. My last and initial massage adventure was undertaken during a vacation to St. Thomas. A couple of days snorkeling without adequate protection left my back aflame. Let's just say the lidocaine they used prior to the massage did little to comfort my burning skin which afterward felt raw...but I digress. The massage was great and when the masseuse worked on the tendons around my shoulder I buckled under the pain. She thought it seemed more tendonitis related than any cuff tearing but suggested that I see my GP just to make sure.<br />Made an appointment with the GP and he ordered an x-ray just to see if it was something minor or major. He also prescribed a steroid to reduce the inflammation. They called a few days later and told me that it appears I have a little arthritis to contend with and we will see how the steroid and some physical therapy might alleviate the pain. It was welcome news considering the day-mares I had been conjuring about metastasizing cells.<br />I made time to cruise by the neighborhood pharmacy only to find that the steroid was my nemesis, P...Prednisone. I've waxed on about my feelings towards this little pill in previous posts during lymphemo. Those who have been following my little cancer tribulation will undoubtedly wonder how might this impact any potential lymph node flare ups I may be experiencing. I would imagine that this short course would reduce any swelling in my system and might mask a new occurrence.<br />Well, I have an appointment this week with my Onc. Although I wasn't scheduled until the end of the month, some slight pings of pain in my chest along with a not-quite-so-clean CT scan a few weeks ago have me in the YELLOW.<br />Anyway, P is still bitter and tough to swallow. Hopefully this is just a blip and I regain a relatively pain-free glenohumeral joint.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-7905579821404127752011-04-27T11:16:00.001-07:002011-04-27T11:43:44.359-07:00Setback?<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGfNlB7XWZ3X8q1ddoSg4Cg9A2Puq6BK1SF5NWcrkuFBXmEuYdxCb4dWKnvXY_gOdGgIQ7jBai55WUPCVvyUuEZDYlKrD0clK1k_FzoV06cDmQPON7b_lHck3J28KvBUCfhBEe68wMVkQ/s1600/mes-lymph.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 236px; height: 280px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGfNlB7XWZ3X8q1ddoSg4Cg9A2Puq6BK1SF5NWcrkuFBXmEuYdxCb4dWKnvXY_gOdGgIQ7jBai55WUPCVvyUuEZDYlKrD0clK1k_FzoV06cDmQPON7b_lHck3J28KvBUCfhBEe68wMVkQ/s400/mes-lymph.jpg" alt="" id="BLOGGER_PHOTO_ID_5600333884486109330" border="0" /></a><br />Paid a visit to the Onc today as a follow-up to last weeks CT scan. Laurie had an appointment this morning and the plan was to meet me there. When she took off in the truck, she noticed that it didn't feel right. Her return to the barn revealed a complete flat. Trusty Nick agreed to change the tire and make sure the spare had enough air but this put me 20 minutes behind schedule. I was doing a lot of active meditation on the drive downtown as I know how late patients can wreak havoc on an office.<br />Checked in, started filling out the "wellness" form, gave my blood sample and completed the form only to have my name called right away; less than 5 minutes. Weighed in, BP was 132/82 and temp was normal.<br />The Onc entered the room and asked how I was feeling and said there was some enlargement in the mesenteric lymph system around my intestines but that the enlargement was not cause for alarm. This was a change from my last scan so we will need to schedule another scan in 2 mos for a comparison.<br />Needless to say, I was a bit bummed as this 2 year appointment marks a crucial milepost in the success of the treatment.<br />I have been worried about all the CT scans as I cannot imagine that the excessive radiation exposure is good for anybody but the other side of the coin is uncertainty. My intuition tells me that catching this sooner than later is a better strategy. We can deal with the radiation issues later...it didn't work out so bad for Spiderman.<br />So...here's hoping that 8 weeks from now we discover this was a normal fluctuation and the enlargement was just a temporary reaction to some other invasion.<br />Knock knock.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-59843541573369840972011-04-21T12:07:00.000-07:002011-04-29T16:30:15.678-07:00We meet again old friend<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4fPu2XsocNcQSzcbsvkV6IincZIa0L8moLtWFByNCHB6weZ74bxJzs8R2Vz5B4BpwZrjXzZhI2-tSNz-j4-oRTLmyh89jEX3E_BO-Y83HUle4dSrJza2niQhoFAAF1mJi4NJFPBliFgY/s1600/ct.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 200px; height: 156px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4fPu2XsocNcQSzcbsvkV6IincZIa0L8moLtWFByNCHB6weZ74bxJzs8R2Vz5B4BpwZrjXzZhI2-tSNz-j4-oRTLmyh89jEX3E_BO-Y83HUle4dSrJza2niQhoFAAF1mJi4NJFPBliFgY/s200/ct.jpg" alt="" id="BLOGGER_PHOTO_ID_5601151934327452242" border="0" /></a><br />Yesterday I had a CT Scan that will mark the two year anniversary of my chemotherapy treatment for NHL. I will meet with the Onc in a week to hear the results.<div>I was hoping to include a picture here of the scanner but my cell camera apparently didn't get the message to "take" the picture. Maybe, just maybe, I'll never see that machine again.</div><div>I spoke to our local holistic doc and asked about the effects of all these CT scans on my system. He suggested that I take a supplement called "Methyl-B" which essentially consists of three folates that purportedly rebuild DNA that is broken down during the scanning process. So I've now added that to a list of daily vitamins I now take:</div><ul><li>Methyl-B - 800mcg</li><li>CoQ10 - 100mg</li><li>Magnesium - 400 mg (vivid dreams on this stuff)</li><li>D3 - 6000 iu (until the sun is more plentiful)</li><li>Omega 3 Fish Oil - 3000 mg</li><li>Centrum</li></ul><div>Still eating Primally and the rest of the family has jumped on board with crazy results. Sage is the lone hold-out but when I cook steaks and spaghetti squash, he eats it...he is getting benefits without fully embracing the theory. Summer, Sage and Laurie are all more consistently physically active with lacrosse, track and riding respectively but I am still churning out body weight activities between calls and my weight has really evened out after losing over 50lbs.</div><div>My total cholesterol numbers in my bloodwork is still a challenge based on conventional wisdom due to my eating habits but my ratios are quite good. Make sure you do proper research on your numbers before agreeing to take statins. Total calculated cholesterol will be the next sham.</div><div>All in all, I feel great and warmer weather is more than welcome. </div><div> </div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-60695926288716845642010-10-28T07:49:00.000-07:002010-10-28T10:45:41.957-07:00Check Up X<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGjN9BQB9DfUia9HZsJGiN7KaJCa0mBrqhotZKtpnMAamm6gP1WQjzW42H_GxtVQ99TcVr2MTKxAIokjctBWGlrbgfX0SMx3d3JZJqO400yNy-HapHnp_LhoZ_sXwzqKe8ShONoAnD2Ps/s1600/life-matrix-bullet-stop-cheat-codes-life-demotivational-poster-1245112392.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 400px; DISPLAY: block; HEIGHT: 274px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5533152570281991794" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhGjN9BQB9DfUia9HZsJGiN7KaJCa0mBrqhotZKtpnMAamm6gP1WQjzW42H_GxtVQ99TcVr2MTKxAIokjctBWGlrbgfX0SMx3d3JZJqO400yNy-HapHnp_LhoZ_sXwzqKe8ShONoAnD2Ps/s400/life-matrix-bullet-stop-cheat-codes-life-demotivational-poster-1245112392.jpg" /></a><br /><div>My quarterly checkups are becoming routine:</div><br /><div>Drive under the LHCP</div><div>Grab a ticket</div><div>Park</div><div>Say "hello" to the elevator monitor</div><div>Hit the 3rd floor button</div><div>Walk down the hall to the office</div><div>Start to get a little queasy from the memories</div><div>Check in at the front desk, validate my parking, pay my $20 co-pay</div><div>Fill out the "how are you feeling" form</div><div>Have blood drawn</div><div>Wait...</div><br /><div>Yesterday the waiting area was packed full of the hopeful, most with an advocate. I suspect they all play the same game, "whose the patient?" We all trade glances to determine our place in the spectrum of treatment. Wheelchairs, masks and headscarves are giveaways. Generally this can be difficult while everyone is sitting down but when they are called to the back offices and begin to move, the distinctions are more evident. Cancer cannot be generalized. We are all gathered in the same office but all are there for various fights. I wonder if the staff can look at their patients and make an educated guess on our diagnosis. Curious.</div><br /><div></div><br /><div>"Paul?"</div><div>All eyes watch my balance as I saunter back to the exam rooms.</div><div>Weigh in time...down almost 50#; not a symptom but a concerted, Primal effort</div><div>BP...low, again, thanks Primal</div><div>Temp...normal.</div><div>Get escorted to an exam room and wait (now almost an hour past the appt time)</div><div>Onc arrives several minutes later with normal "how are you feeling" inquiries</div><div>We review my Primal eating activities and he acts impressed.</div><div>We do the grope dance as he checks for enlarged nodes and listens to my lungs.</div><div>"let's move out to 6 mos. with a CT. you are doing very well"</div><br /><div>Music to my ears.</div><br /><div>We head back to make an April appt and wade through the wounded and hurting. I feel very guilty about doing so well with all the suffering contained in that waiting area.</div><br /><div>I am handed my liters of diabolical drink which will sit in our pantry for the next six months as a looming reminder that I'm still dodging bullets. I confirm with the nurse that this BS (barium sulfate) has no shelf life; exactly.</div><br /><div>We lurch into the hallway and immediately the mood changes.</div><div>Head down the elevator.</div><div>Nod our "have a good day" to the elevator attendant.</div><div>Climb into the car and ascend into the daylight from underneath the LHCP.</div><br /><div>It is a good day.</div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com3tag:blogger.com,1999:blog-3408169011231888353.post-24342716617658195252010-07-12T08:37:00.000-07:002010-08-26T10:58:24.306-07:00Status: Another Check-up<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9oNYDgR0-yU2OdhlqZT8kVVtL8mzxDe9NT8NoxRm4V9WStpjxUri0s4SwxT6q1qhTtRIozULb2c6gcItSF3ST5TUIS926p41tt7Mp3E7HH7Qws9lIAxKfjpIMO6C7iDLMBYup7GL5HvU/s1600/hope-fist.jpg"><img style="MARGIN: 0px 0px 10px 10px; WIDTH: 200px; FLOAT: right; HEIGHT: 174px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5493433615412266242" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9oNYDgR0-yU2OdhlqZT8kVVtL8mzxDe9NT8NoxRm4V9WStpjxUri0s4SwxT6q1qhTtRIozULb2c6gcItSF3ST5TUIS926p41tt7Mp3E7HH7Qws9lIAxKfjpIMO6C7iDLMBYup7GL5HvU/s200/hope-fist.jpg" /></a> Had another CT Scan on June 21st. Nothing has changed with that process although my head felt as though it was on fire while the contrast was being administered. <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">Typically</span>, that <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">warm feeling</span> wasn't so unpleasant before.<br /><div>Met with <span id="SPELLING_ERROR_2" class="blsp-spelling-error">the Onc</span> on June 30<span id="SPELLING_ERROR_3" class="blsp-spelling-error">th</span> and he announced all was well. Nothing in the blood work, nothing on the scans...there as one outlier; weight loss. Now the <span id="SPELLING_ERROR_4" class="blsp-spelling-error">Onc</span> and I have had many conversations about my weight since my diagnosis. At one point, I exclaimed, "I'm determined to change my lifestyle and surprise you". He chuckled, "You would be the first".</div><br /><div>It has been my experience that doctors realize weight has an affect on general health. They always tell most of us to lose weight and rarely explain how we personally could accomplishwhat with age, seems to be a constant struggle. The old adage, "Eat less, exercise more," seems to be an easy fix but the curious and self-competitive side of me engaged in a pursuit of knowledge that led me to <a href="http://www.marksdailyapple.com/">Mark's Daily Apple</a>. As with any movement, primal eating has lurkers, the bleeding edge, and many, many people in between. I'm more comfortable closer toward the edge but I find fanatics troubled and ultimately boring. So I will avoid boring you aside from saying, I am on day 60. 6o days of a lot of meat, eggs, vegetables, fruit, nuts and seeds. That's it. 27 lbs lighter. More energy, better sleep, stronger. I have reduced my hard <span id="SPELLING_ERROR_5" class="blsp-spelling-error">cardio</span> work to 1000 jumps with a rope per session every 7-10 days, random body weight exercises (push-ups, pull-ups, dips, etc.), and <span id="SPELLING_ERROR_6" class="blsp-spelling-corrected">occasional</span> 5 x 5 using three of the basic weight lifting techniques (squats, <span id="SPELLING_ERROR_7" class="blsp-spelling-error">deadlifts</span>, curls, presses, etc.). Nothing fancy. Believe me, this is a far cry from <span id="SPELLING_ERROR_8" class="blsp-spelling-error">some</span> of the weight lifting routines I have embarked on.</div><br /><div>The <span id="SPELLING_ERROR_9" class="blsp-spelling-error">Onc</span> was a bit concerned about the rapid weight loss and whether I would be able to sustain that diet. He also mentioned the China Study book which gave me pause only to find so much contrary evidence online by folks just as qualified and respected as the author.</div><br /><div>Anyway, BORING. I decided to start another blog called Primal Paul but realized that I wasn't interested in regular entries about my primal progress. So...I'll use this forum to update all my health progress.</div><br /><div>Feeling groovy.</div>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-30578983964532513862010-03-12T06:30:00.000-08:002010-03-12T08:54:40.506-08:00Update<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvNQxQhPI9kHZqcJJhcXXoF34aHNSKw3PocDAUILihlxUQEDlMEDXX5Fz50SOF3tf63gy6Kk9WwVozH_pkVtbQnGO-Zf8g8t4cUQdftAFDJVO3qlfZVEpdC3iE056XCvlQ2jIWeETiwyE/s1600-h/baloo02.gif"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 222px; FLOAT: left; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5447788220914047554" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvNQxQhPI9kHZqcJJhcXXoF34aHNSKw3PocDAUILihlxUQEDlMEDXX5Fz50SOF3tf63gy6Kk9WwVozH_pkVtbQnGO-Zf8g8t4cUQdftAFDJVO3qlfZVEpdC3iE056XCvlQ2jIWeETiwyE/s320/baloo02.gif" /></a><br />Met with the Onc yesterday for yet another 3 month check-up and it appears that Lymphoma is still on hiatus or a permanent leave of absence. Excellent news! I should probably bring you up to speed on a couple of issues that reared since my last entry. Several weeks ago, I started to feel a dull, 30 second ache/pressure in my chest several times each morning. After a visit with my GP, complete with a normal EKG, he suggested that we start medication to bring down my BP and expressed concern in my overall LBs. I started taking the meds and my skin started to itch. I took every opportunity to find relief, Baloo-style, within the doorways around the house. I was scheduled for a stress test which required IV contrast in order to see my heart sonograms clearly. For those unfamiliar, they take measurements of your heart at rest with a sonogram, put you on a treadmill which increases speed and incline every 3 minutes attempting to get your max heart rate. The contrast pic line was hanging out of my arm during the test and I was instructed to let them know about 1 minute before I was "done." This seemed odd because I didn't know what the criteria for "done" actually was so they suggested a heart rate of 170 bpm. They asked that I not jog but rather walk as fast as possible. This was a comedy as I fought back guffaws during the test. I met with a cardiologist a week later and she said my heart was perfect, no issues. I mentioned the itching so she prescribed an alternative explaining that it may cause some swelling.<br />I started to perform some cardio and lifting routines from Tony Horton and purchased a DVD set of "Insanity" because I like a challenge. Insanity arrived in the mail and I knew immediately that this would be trouble.<br />After a week of the second medication, my feet and legs looked like sausages and my skin was stretched to the limit with the swelling. This couldn't continue. I stopped the meds and continued the Insanity work outs. The itching and swelling are gone. My BP has been below normal w/o meds and my sinuses are still clear.<br />Back to the Onc visit -- before escorting you to the examining room, they always take your blood, BP and weigh you in. My BP was 154/96 and my weight was 6 lbs higher than my last weigh in. Demoralizing. It has only been a couple of weeks but given the amount of sweat on the basement floor, I would have expected to see some improvements. Here's to health...pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com0tag:blogger.com,1999:blog-3408169011231888353.post-90849965496493265152009-12-10T18:05:00.002-08:002009-12-10T19:22:38.662-08:00NED<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiw2wbzr7DFe5mCD9eDyjvKFoi1FBt40eXBdcFBjtcHMwQv4SUQ0veWmfBZI_bQCjfuUN7k9YUxdYb0eiFcHIpxjFRBEcdbjUncDL6G4spxfrJ_BXQjahuH5WImTqzmhUjomen-EKLmc8g/s1600-h/smiley_2.jpg"><img style="float:right; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 150px; height: 150px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiw2wbzr7DFe5mCD9eDyjvKFoi1FBt40eXBdcFBjtcHMwQv4SUQ0veWmfBZI_bQCjfuUN7k9YUxdYb0eiFcHIpxjFRBEcdbjUncDL6G4spxfrJ_BXQjahuH5WImTqzmhUjomen-EKLmc8g/s320/smiley_2.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5413812660169862594" /></a><br />To be perfectly honest, I had been mentally composing a "Lather, Rinse, Repeat" blog entry for the past two weeks. My chest hurts, pains sparking on the left and right sides of my abdomen and my cough is getting old. The Onc appointment today was just a formality to confirm what I already knew, relapse. I have been trying to keep a brave face for Laurie and the kids, often waking early in the morning to roll around and fret about my next round of chemo. Today couldn't come soon enough to relieve me of my stress; at least I would know.<br /><br />Interestingly enough, a blizzard kicked in so driving to LHCP was exactly like last year, treacherous. We left early to make sure we were on time and fought our way down the freeway with everyone driving very cautiously. After sign-in, they immediately called my name for a blood draw. The phlebotomists are still having some difficulty finding veins. She poked me only to have the vein roll away. She queried, "How's the weather holding up?" while tipping the needle around under my skin trying to snare the slippery tube. Blood finally shot up the tube and we were in business. I filled out the "How are you feeling today?" paperwork and they called me back. The dreaded weigh-in, gained 4 lbs and high BP (145/93). Wouldn't anyone's blood pressure elevate given the possibility of relapse? Deep breath.<br /><br />In the waiting room, Laurie and I have a laugh about this and that until my Onc enters the room. OK, don't mince words, let's have it...<br /><br />"CT was clean as a whistle." Huh? Are you sure you have the right results? No Evidence of Disease (NED). What? 100 lbs lifted from my shoulders and suddenly I am in a different world. I'm still cancer free. Yeah baby Yeah!<br /><br />He did the normal groping for swollen nodes, nothing. Lungs sound clear. I asked several questions about my mental state and the pain which can all be attributed to my Thanksgiving cold. The Onc explained that my lymphoma will take several weeks to present symptoms so I should just relax and only get uptight if strong symptoms arrive (night sweats, fever, extreme malaise, swollen nodes, etc.) but otherwise, enjoy a chemo free Xmas. I will.<br /><br />"Lose some weight, buy a BP cuff for home use and monitor it for a while. Keep up the good work. See you in 3mos." <br /><br />Indeed.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com7tag:blogger.com,1999:blog-3408169011231888353.post-79475478327433428952009-12-03T11:49:00.000-08:002009-12-03T13:04:15.006-08:00Post CT Scan #2So now I wait. <br /><br />Tuesday night I was instructed once again to figure out a way to drink another dose of Barium Sulfate. They have a new fangled bottle shape and have tried to mask the chalky taste with an artificial orange cream flavoring. Forever the food tinkerer, I decided to try a frostier approach. I left the bottle in the freezer a little too long forcing me to churn it with a spoon to dislodge the icy chunks from the sides of the container. Instead of chalk, the slushy substance was chock full of ice flakes and olive-sized blobs.<br /><br />The next morning, for the second bottle, I opted for the straight approach. Guzzled half the bottle and set the rest aside for a little pre-scan refreshment.<br />I should also mention that I started coughing late on Saturday and should have secured a power dose of Echinacea but a warm bed and sleep seemed prudent. The cold took its usual course but I can't help being reminded of my respiratory condition at exactly this time last year. <strong>Saturday (12/5) signals the one year anniversary of my foray into NHL.</strong> <br /><br />The scan was uneventful. Normal niceties with the Tech and a brief synopsis of my journey followed by the ritual stabbing of the needle and subsequent introduction of another 120 mL of contrast and saline. That wonderful internal heat wakes your mouth, chest and then your loins. The CT machine began to accelerate as I was inserted into the "donut." Several "hold your breaths" and in-n-outs later, I'm back on my feet as contrast odor begins emanating from my pores.<br /><br />My Onc visit is next Wednesday and I really hope that I do not hear from them until that time. If the caller ID displays "Cancer and Hemat" anytime before next week, I will panic slightly. Repeat after me, "NED...NED...NED."<br /><br />So now I wait.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com2tag:blogger.com,1999:blog-3408169011231888353.post-32435387999370361872009-10-27T14:05:00.000-07:002009-10-27T14:32:07.331-07:006 months outLast Friday I had my 6 month check up. Hard to believe that almost a year has passed since my diagnosis. I'm 15 lbs lighter than my highest point and my BP was 140/90 (they never comment about that; seems high, no?) Met with my Onc and he did the once over. This consists of feeling for enlarged nodes in all the suspicious areas. Nothing jumped out at him, bloodwork is normal and my lungs sound fine. I have been really anxious about intermitent thoracic aches and have experienced some stomach pain. The tough part about bringing it up is that it could be some passing virus or maybe an ulcer has developed from the anxiety of remission; could also explain the high BP. The Onc says, "If you have pain lasting more than a week, let me know. If you have relapsed the treatment doesn't change. We would most likely perform a bone marrow transplant and run another round of chemo." He also said, "Some people never go into remission and the first round response was excellent."<br /><br />So despite a few coughs and some passing bouts of suspicious pain, I seem to be getting back to a normal state. I've managed to abstain from processed sugar since early June; eating lots of fruit which is easy in Michigan during the summer. My cancer well-fit class from July thru September was just what I needed to get moving again and wake up some dormant muscle fibers. The basement weights are once again thumping and clanging a few times each week. All in all, things are coming along.<br /><br />We scheduled another CT scan for the first week in December unless I want to do it sooner to ease the aforementioned anxiety. Stay healthy.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com4tag:blogger.com,1999:blog-3408169011231888353.post-53002575975049735192009-10-19T08:13:00.001-07:002009-10-19T08:35:53.949-07:00Coiffure<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhFwDRbaxehunxjD8mPAskngtHvk6IL_lB3t9J447Xh1HUDMFhln8l0sOtpL2fyDRJnWxh-CRg6aWC_6lwYQB5fzDnxlM2k8hNSMjd2LdwKKT9JFaNakqfMJTAaswlZy1CEQWL0a5sd8I/s1600-h/joey276x375b.jpg"><img id="BLOGGER_PHOTO_ID_5394331639339929618" style="MARGIN: 0px 5px 5px 0px; WIDTH: 125px; CURSOR: hand" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhFwDRbaxehunxjD8mPAskngtHvk6IL_lB3t9J447Xh1HUDMFhln8l0sOtpL2fyDRJnWxh-CRg6aWC_6lwYQB5fzDnxlM2k8hNSMjd2LdwKKT9JFaNakqfMJTAaswlZy1CEQWL0a5sd8I/s200/joey276x375b.jpg" border="0" /></a> Jan09<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTbjCOxUGeNYSFYeuo28_BQo-TlDY8duxIrZF3Y4zATa6zMs3nhGH4f552qZ3lB7ZaaYa4CsmtzbeLqVVVfOKHyDXVBzajwgUxNCWaXmkRSjbuMc1jfA3LO72N7NdJCaXpx1vMYk8P1a0/s1600-h/realhomer.jpg"><img id="BLOGGER_PHOTO_ID_5394331946612583794" style="MARGIN: 0px 5px 5px 0px; WIDTH: 125px; CURSOR: hand" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTbjCOxUGeNYSFYeuo28_BQo-TlDY8duxIrZF3Y4zATa6zMs3nhGH4f552qZ3lB7ZaaYa4CsmtzbeLqVVVfOKHyDXVBzajwgUxNCWaXmkRSjbuMc1jfA3LO72N7NdJCaXpx1vMYk8P1a0/s200/realhomer.jpg" border="0" /></a> Apr09<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNVSgHORRW0bArxHk-Y0fjQSeuJ0Ak-kx8uQZy-aeerz7xlngGW4W-xDA3sEycItQEENfS4XPPbjzxS0wvF_f1AOhtOi4XHP9Y0hl9XfgbF4u1b6Su5ddde6VhBkTGkVdwJfYrJ8WI2Pc/s1600-h/eraserhead.jpg"><img id="BLOGGER_PHOTO_ID_5394331951653357058" style="MARGIN: 0px 5px 5px 0px; WIDTH: 125px; CURSOR: hand" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNVSgHORRW0bArxHk-Y0fjQSeuJ0Ak-kx8uQZy-aeerz7xlngGW4W-xDA3sEycItQEENfS4XPPbjzxS0wvF_f1AOhtOi4XHP9Y0hl9XfgbF4u1b6Su5ddde6VhBkTGkVdwJfYrJ8WI2Pc/s200/eraserhead.jpg" border="0" /></a> Sept09pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-1061204082982661082009-09-12T10:20:00.001-07:002009-09-12T10:20:40.933-07:00Pink Arrow Night<p>The second annual “Pink Arrow” football game occurred last night.</p> <p><strong>Quick brief:</strong> My children attend Lowell Schools whose mascot is the Red Arrows. In 2008, the football coach decided to create a game dedicated to those fighting cancer, survivors and those who lost their battles. The football players wore pink jerseys with names on the back to honor friends or family members. Attendees were encouraged to purchase pink game t-shirts as a donation to support cancer charities. It was a great success earning over $90k.</p> <p>The second annual event was bigger. The tennis teams, cross country team and volleyball teams joined in the festivities. My daughter plays volleyball and they constructed an outdoor court at one end of the field to play prior to the game. Summer asked me to show up for a special seat only to find that between games they honored a few cancer survivors with a small pink and white volleyball signed by all the players. After the game, Summer was interviewed by the Grand Rapids Press…</p> <blockquote> <p>“An estimated 3,000 fans watched Michigan's first outdoor high school volleyball match. The Pink Arrows swept Forest Hills Northern in three games played on a court set up in the high jump area at the north end of Bob Perry Field. <br />The volleyball match, which was sanctioned by the MHSAA, was particularly significant for Lowell junior Summer Moore. Not only did Moore, a backup setter, see her first action of the season, she played in front of her father, 44-year-old cancer survivor Paul Moore. <br />Moore was diagnosed with non-Hodgkins Lymphoma before Christmas last year and began chemotherapy the day after Christmas. <br />"He always stayed positive through the whole thing," Summer Moore said. "At the end of May and beginning of May, he was in remission, and he is doing better now. To have a parent go through this, and then to play in something like this, with him here is amazing. </p> <p>"Ever since I was young, he got me involved in a lot of sports. Playing here today I am supporting him. I feel like I am giving something back to him." <br />Paul Moore's final two scans have been clear. <br />"So far so good," he said. "I had my last chemo in May and my hair started to grow back. The whole thing that Lowell is doing is something special, and the girls playing volleyball outside today was special."</p> </blockquote> <p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgas0cDkTFW8TrXOvloeL6FlwvkzExUdM929eZZ9S5NLJ-Ba3SgTj19cHNBnqi3kLwV8MVgINcdUHNJ4pR4EIz1JqcUsWtIRjcPLv8UdhmBWIWKr132FCnlSlSlY6AkWfFv91jYghzjtTc/s1600-h/sumvb1%5B4%5D.jpg"><img title="sumvb1" style="border-right: 0px; border-top: 0px; display: block; float: none; margin-left: auto; border-left: 0px; margin-right: auto; border-bottom: 0px" height="335" alt="sumvb1" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtwIRwMdRNYC84qDzOqWngGyuqGEM6EA5yrtvWV72BBm0MIypdEQhpDyhFW0bDHMkL6EGoLSU2yOlIzcc6vpUhYpSP2aI5QGIJyjJnR5VMKUwgUsdNbCm-F7XDPBx-y0rf13PWzoXMdD8//?imgmax=800" width="316" border="0" /></a></p> <p>Great kid.</p> <p>Read the entire article here: <a href="http://highschoolsports.mlive.com/news/article/3903962509148772287/pink-fever-spreads-as-lowells-football-volleyball-teams-win/" target="_blank">Pink Arrows 2009</a></p> <p>I was trying to think of something clever to say but there was so much happening that I felt humbled by the madness; emotions welling up, thousands of people, pink everywhere, lots of encouraging words. </p> <p>I look forward to hearing the final $$ tally as there are plans to create a Gilda’s Club in Lowell.</p> pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-47133168820986168002009-07-23T11:26:00.001-07:002009-07-23T11:26:32.674-07:00Update<p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1Ee2nRwxnlSERZHgecKkPiqw__Rjg18vuYQUaftGVS3oCUrvL5OcZVF3HIdEsUNnblkzPmaSvUq4695Q1K3ZvvdvGwH8_GSa8xy6_TcZfTm22Ewt2lideSzirHYjNZTZZ_rd3aCJ6M5Q/s1600-h/thumbs_up%5B4%5D.jpg"><img title="thumbs_up" style="border-right: 0px; border-top: 0px; display: inline; margin-left: 0px; border-left: 0px; margin-right: 0px; border-bottom: 0px" height="240" alt="thumbs_up" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiyU_W9N8Zc0pgg7vq6yQ94bQyxEAYVxMpIozmzwoTH_D3gjEcDOPEKI13whAOr1XY215cLCP_LIVz4T17ysMfW_G9ZezSP7mxCeQ6X8qJGHoHNu3mH_k1ijDx0jqoXoxmMxxsxswiANVo//?imgmax=800" width="186" align="left" border="0" /></a> Last weeks scan results are in and there are no changes from the April ‘09 scan. Although I still am experiencing little transitory ”sparks” of pain in my chest and abdomen, the computed axial tomography doesn’t lie. I’m still remitting.</p> <p>I’m also back to being muscle sore thanks to the fine folks at East Hills Athletic Club. My Cancer WellFit class is a little slow for me as we are still reviewing the machines and their various settings. After class, I typically toss the iron around and then run/climb/row to nowhere until I’m breathless and sopped. Good times.</p> <p>I’ll try to get some new paintings posted soon.</p> pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com3tag:blogger.com,1999:blog-3408169011231888353.post-38872302755134842672009-07-16T07:21:00.001-07:002009-07-16T08:15:54.854-07:00This week...Although I have heard some disappointment that my blog entry production has fallen off, please take that as a good sign. I am feeling normal enough that lymphoma takes a back seat to everything else in my life.<br /><br />Having said that, this week has generated some lymphoma related activity.<br /><br />On Tuesday, I met with the Onc for my first follow up. The appointment was moved up from early August because I was unsure what aches and pains should be a concern and what I should look for as a warning sign. They performed a blood draw and my veins are still shot; "thin and deep." Despite this fact, the phlebotomist stabbed into my inner arm at an unusually steep angle to reach pay dirt. The bruise is about the size of a 10p nail head. Here's a downer: I have sworn off processed sugar for the last 5 weeks. After the initial cravings, it's surprisingly easy to avoid. Lots of fruit has replaced the sugar that I was convinced was making chemo bearable. I jumped on the scale anticipating a stunning loss only to be mocked by a 2lb drop. TWO pounds! Ridiculous. I've been hitting the free weights again so that might account for some imbalance but good grief, that's discouraging. On the bright side, my BP was a respectable 118/78.<br /><br />The Onc said the blood work and chemistry look better than normal and that all my little aches and pains are common. Most likely accentuated by a heightened sense of self given the past several months. In order to give me some peace, he thought that a CT scan was in order.<br /><br />Wednesday evening signaled the first night of my Cancer WellFit course. For 10 weeks, I have access to a health club and a personal trainer who will help me fashion a proper program for my recovering coil. Laurie is also invited as my "Supporter" to help me stay motivated. It will be a symbiotic motivation given Laurie's unpredictable schedule. After riding several horses and teaching all day, the idea of driving to a building to push weight around or walk/climb in place seems irrational but she's game. We performed some basic balance and strength tests to create a baseline and hope to see some improvement in a couple of months. Later that evening, I had to mentally prepare myself for the first of two bottles of Barium Sulfate in preparation for my morning CT scan.<br /><br />This morning I popped out of bed at 6am to choke down another half bottle of BS and headed off for the scan. After entering the room, I warned the technician that veins were going to be hard to come by so she fingered around my inner left elbow and said, "I think we need to try your hand." Oh boy. See my <a href="http://mrlymphoma.blogspot.com/2009/05/out-with-port.html">port removal </a>entry for me thoughts on hand pokes; it stings. She rooted around with the needle under my skin for several minutes muttering and sighing until she finally gave up while apologizing for the unnecessary pain. "The veins kept rolling away from the needle." She moved to the right arm and found a thumper just below my blood draw bruise. I had visions of my arm filling up like a contrast water balloon but that old metallic taste filled my mouth and that crazy heat ran through my body signalling a successful poke.<br /><br />I should have the results in a week but anticipate no problems.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-28516235991353661742009-06-19T03:42:00.000-07:002009-06-19T03:59:52.262-07:00Overdue Thanks...Although I may still be in the struggle (only time will tell), I feel compelled to address the countless people who have made my diagnosis and chemo phases more tolerable. I feel much better these days. Each day my facial hair gets stiffer and my increasing head hair garners observance from many of you, "wow, look at your hair!" I look back at the last 6 months and try to determine where it went as I marked time between blood draws and lymphemo. I would not have faired as well without the positive energy that so many people sent my way. Hopefully my attempt at protecting everyone's privacy will not be construed as too informal.<br /><br />First, I need to thank my family for being brave. I have a tendency to lace most circumstances with humor in order to take the edge off. The kids continued to excel academically and in their afterschool activities despite the gloom which made me feel better. Laurie proved once again that I had terrific foresight when we met in high school. She has been the best partner in this journey and I will never find enough words to express my gratitude and love for her; "in sickness and in health".<br /><br />Early on, Gay stepped in and offered to organize meals for us; 3 days a week. This was the best strategy for everyone who wanted to help us. Laurie's brother, Dave, assisted with the calendar app and everyone below deserves my gratitude:<br /><br />Betty Jo C. (for including the kids)<br /><br />Deb C. and Family (for ad hoc shopping too)<br /><br />Laura & Don F. and Family (for meals and sisterly concern)<br /><br />Greg & Kristen and Family (for meals and brotherly concern)<br /><br />Lynda & Bill C<br /><br />Pam & Don W and Family<br /><br />Myra & Tina<br /><br />Sue C & Family (Sage's home away from home)<br /><br />Connie & Jim O<br /><br />Alexa C<br /><br />Elaine M & Family<br /><br />Lynn S<br /><br />Katerine V<br /><br />Special thanks to my parents who graced me every Weds with housework, laundry, great comfort food and good humor. I'm lucky to have such wonderful role models.<br /><br />In January, we spoke to a cancer researcher who emphasized that I make sure to get a lot of calories and I took full advantage. I'm paying for it now as the lbs seem to come off slower than I packed them on but I'm working on this.<br /><br />After I was diagnosed, we overhauled the house between Xmas and New Year's day with the help of my extended family. The wood floors have made a huge difference in our ability to keep the house tidier.<br /><br />Dave M (for figuring out how to cut the curve)<br /><br />David M (for visiting at the right time) & Oliver (for entertainment with pop tunes)<br /><br />Lionel & Annie R and Family (for ongoing support)<br /><br />Carla MG (for motherly support & C advice)<br /><br />Laura F<br /><br />Greg M<br /><br />Jerry M<br /><br />Jill W<br /><br />Whitney & Todd<br /><br />Ally Y & Dana C (Summer's friends)<br /><br />I have also received gifts from friends and family including:<br /><br /><a href="http://www.fitnessrepairparts.com/diagram/7201">Schwinn Johnny G Spinner bike </a>from Julie B.<br /><br /><a href="http://www.amazon.com/Mark-di-Suvero-Dreambook/dp/0520258657/ref=sr_1_1?ie=UTF8&s=books&qid=1244205222&sr=8-1">Dreambook</a> by Mark di Suvero - signed no less :)<br /><br />New Yorker magazines from grandpa Carl G<br /><br /><a href="http://www.thinkgeek.com/caffeine/accessories/ab3f/">Miracle Berries</a> from Gabi H.<br /><br />Several art books and catalogs from Heidi H.<br /><br /><a href="http://www.amazon.com/Four-Agreements-Practical-Personal-Freedom/dp/1878424505/ref=sr_1_1?ie=UTF8&s=books&qid=1244205511&sr=1-1">The Four Agreements</a> and an inspirational DVD from Kamila D<br /><br /><a href="http://www.theshackbook.com/">The Shack</a> and <a href="http://www.thesecret.tv/">The Secret</a> from Elaine M<br /><br />Several books(<a href="http://www.amazon.com/Sanibel-Flats-Doc-Ford-Novel/dp/0312926022/ref=sr_1_1?ie=UTF8&s=books&qid=1244645893&sr=1-1">Sanibel Flats</a>, <a href="http://www.amazon.com/Empires-Sand-David-Ball/dp/0440236681/ref=sr_1_1?ie=UTF8&s=books&qid=1244646002&sr=1-1">Empires of Sand</a>, <a href="http://www.amazon.com/Dirty-Job-Novel-Christopher-Moore/dp/0060590289/ref=sr_1_1?ie=UTF8&s=books&qid=1244645908&sr=1-1">A Dirty Job</a>) from Connie O<br /><br />and the continued comments from Friends and Family on this blog. It's entertaining to read your responses to my entries. Many thanks.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com4tag:blogger.com,1999:blog-3408169011231888353.post-9300569963786477882009-06-10T07:10:00.000-07:002009-06-10T07:26:18.078-07:00#31 & 32<div>I took the week off and have spent some time reviewing message boards. Not sure if that was a great idea as most of the posters often have ongoing reoccurence. Although I feel fine and energy is coming back daily, I still fret.<br /><br />Despite that, this week I celebrate my son's 12th birthday and prepare for my daughter's graduation party. The time off allowed me to add two more additions to my horse series...</div><br /><br /><table width=100% border=0> <tr><td width=50% align=center valign=top><img id="BLOGGER_PHOTO_ID_5345702216226245890" style="MARGIN: 0px auto 10px; WIDTH: 200px; CURSOR: hand; HEIGHT: 156px" alt="#31" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzCXjfjkPnjyBry1bgDLjKxi4cANi_9c74m5fMdxOlbqheQMks3jvsdFcXBn8FPSzT0mBQB6FQ_8R5Rw4UcZnnKoSvCBrWVEPwNMzDYXvi8UjLDEBIQuepaX5LlSbXk8x7RsnHcaoH0AU/s200/horse-star-sm.jpg" border="0" /><br>#31</td><td width=50% valign=top align=center><img id="BLOGGER_PHOTO_ID_5345702471281625410" style="MARGIN: 0px auto 10px; WIDTH: 149px; CURSOR: hand; HEIGHT: 200px" alt="#32" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPQP1FBYjKFcwZWb98XIU3b1GinnbA9cXG2IIJSl4tH3TDcPcUTMEYR4bIRMiqE95w9PJm8Dt57WkwfU9QX4jIugKVjV9oaZD28wOzFNTXKHyCtKAnHU5PhezvKqSNCUdAcwvyUPDXqFk/s200/white-horse_sm.jpg" border="0" /><br>#32</td></tr></table>pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com1tag:blogger.com,1999:blog-3408169011231888353.post-44558828165037239142009-05-21T11:30:00.001-07:002009-05-21T11:30:25.103-07:00Out with the Port<p>My Onc said that I could schedule my port removal at any time as he didn't think I would be needing it soon. Although it was nice to have during chemo, the claims about using it for the blood draws never panned out because a nurse is required to perform the draw if you have it done through the port. I was willing to put up with the little pokes in my arm every three weeks as I really wanted to get out quickly. If you wait for a nurse, you have no way to gauge the time required. <br />The port is placed just under the skin on top of the muscle. The little tube is fed upwards over the collarbone and into the jugular vein.</p> <p> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhm-m5-GXbHiUDPnG6ztAJi6ddDN_-HPPgfInmyYh7kNPaVL84jCpIWAthDayxFYDf1i9lugAeEgoGtOIC5j4M3UgdpCXX8GV25oVJMcK5zaQ9nLJAACbtAU27k_nwAWD_yoxAFfDrxkw/s1600-h/preport%5B2%5D.jpg"><img title="preport" style="border-right: 0px; border-top: 0px; display: inline; border-left: 0px; border-bottom: 0px" height="164" alt="preport" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj6VUH4TQaBorWTVG7SHFToiJtVxTKiKVp0kRsAYp-wZziZG2-9yT0ivy2oPx5hb7vYy5dcEZ0_pS79Tpa47aCtZ7KK9ykigvCnv9CUKkJHT3wW8hd-CMdrrF9c-F0iEo92QTo6mBygSuI//?imgmax=800" width="244" border="0" /></a> </p> <p>Before: If you pop open the image you may be able to see the tube just under my skin.</p> <p>The removal was scheduled to occur at the LHCP and once again, checking in was a cinch. LHCP really have their act together. I changed into the standard issue surgery gear and hoped they would be able to find a vein for the blood draw. No problems, blood draw went off without a hitch even though the vein was tough to locate. The prep nurse entered again and explained that she would have to poke me for the IV. We discussed the fact that my veins were getting harder to find and we decided to try the back of my hand.</p> <p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEijL6xsthJU8BP7H8JxCkvkzUJiNUtn81BfW-9PPshliA_tNRKfz6UybziRkOdd5wbTGSsBXnXi5nV3gQTy1r_qBz1wRGj03oebZ1Xo1Q1Kczd9w5-qgxZ4hyphenhyphenwglyuIbwITrOXqJzbbgWg/s1600-h/img167%5B2%5D.jpg"><img title="img167" style="border-right: 0px; border-top: 0px; display: inline; border-left: 0px; border-bottom: 0px" height="184" alt="img167" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9kxYj05wZe68Jc4GukhXxr03RAjRD29VzRJ4QM7kQ8tr2P-UBpycsnWh7T5Xmihq-g_d4IXABh4J1gOdfRFXRwEzhVxouQQAualB1lVxyDMMjo5GUcozyGZur1Nu-iqZEPNmSBBhlGC8//?imgmax=800" width="244" border="0" /></a> </p> <p></p> <p>From my cell phone…I know, not so flattering. Laurie tells me that my frames mask the lack of eyebrow hair. I also look very swollen.</p> <p> Anyway, you can see the IV line and I must say, despite the prep nurse warning me that the back of the hand is more sensitive than the inner elbow, the pain from this poke ranked up there with the bone marrow sample only it didn’t last as long. Felt like a long bee sting so I wouldn’t recommend this to anyone. The site still smarts two days later. Although they used conscious sedation during the surgery, I took advantage of the legal high and drifted off blissfully. There was only one incision so I questioned how they pulled the line from my jugular vein without a spectacular internal bleeding event. Apparently direct pressure for a short period gives the jugular vein enough time to self heal. Pretty cool.</p> <p>So here is the aftermath so far:</p> <p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgxBEEIchlIUyFWdgi-FAoa-SkAtbiqfajJ7UeRXqHvEQSY2NaD9JmowKwAsLvoD4IRkPxsknMd0Y3TIBMl0Oc87jGWRvW2MsswNjZJuEn3eH9too3lz4RtHGlsDBxQ8J2WEEyFg0L91Z4/s1600-h/postop%5B2%5D.jpg"><img title="postop" style="border-right: 0px; border-top: 0px; display: inline; border-left: 0px; border-bottom: 0px" height="164" alt="postop" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpEU6reKJzBin_KAvP8saDxycRSaw9wpKSnAygMHJJTspn1ZXxDx2DVFyAf1RRLps56fY6cYeh5URQCG5vLukbj4TTaqWgcCyLJQ7hcacn_C6H87m_eOmj20DQ0Pd2JmwgY0TQA4z7vMY//?imgmax=800" width="244" border="0" /></a> </p> <p>and the best part: They let me take the port home as a trophy:</p> <p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYAuT0jl1bsL8hksEu7zcHpTaufnUZrwC1MeRkeL62nEWEfSfXfdnq1TOfpvo2SaX3uNGkR6Se8k13gH7dZF7EwlEJs0k25A2LLfeSuMJbSO4B1ZiR4c_wUmuhkZQTTWEay_c1BvhSm8A/s1600-h/port%5B2%5D.jpg"><img title="port" style="border-right: 0px; border-top: 0px; display: inline; border-left: 0px; border-bottom: 0px" height="200" alt="port" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg0k9UIYCXQ8zVlg3ZjxyvW8Rxx2-TyRCl_zF83R_GieQFGP58rHQzI-D79qMAJJL9LXDOeg9lYo51ntNMwjDQxANbY9XdyrXCw0BuiMTiLqWpj6Up4u8MaaNIImx8R6a067EwI0kt0q6Q//?imgmax=800" width="244" border="0" /></a> </p> <p>I keep it in a plastic sample jar …it smells a little like rotten meat.</p> <p>My lower left leg blew up a little yesterday afternoon and I have been feeling some pain along the inside of my knee. I called LHCP just before 5pm to see if I should be worried and they suggested that I go to ER in case I may have developed a blood clot. I had been experiencing this edema since the Fall before my diagnosis so an evening in the ER only to have them say, “lay off the salt for a few days,” wasn’t on my shortlist so I’m monitoring the situation today. I know, I know…when did I get my medical license?</p> <p>Still waiting for the Cancer WellFit course to start.</p> <p>Next up, more healing.</p> pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com3tag:blogger.com,1999:blog-3408169011231888353.post-9475315161122046532009-05-05T11:45:00.000-07:002009-05-05T12:49:19.031-07:00ah, RemissionIt's official, I am now in <a href="http://en.wikipedia.org/wiki/Remission_(medicine)">remission</a>. My <span class="blsp-spelling-error" id="SPELLING_ERROR_0">neutraphil</span> count is back to 4500 and the <span class="blsp-spelling-error" id="SPELLING_ERROR_1">Onc</span> said that I could make arrangements to have my port taken out. They scheduled my first follow-up appointment for early August and I just need to work on recovering and losing some of this steroid weight. The <span class="blsp-spelling-error" id="SPELLING_ERROR_2">Onc</span> said that 4 in 10 recover to the point of being considered "cured" so I am shooting for the minority.<br /><br />It is odd to be in this position because it is good news to know that NHL is temporarily taken a hiatus, but the thought of it coming back and haunting me any time soon is taking a bit of the joy out of today's discovery.<br /><br />Whenever I'm faced with odds like these, I pull a scene from <a href="http://www.youtube.com/watch?v=KX5jNnDMfxA">Dumb and Dumber</a> between <strong>Lloyd Christmas</strong> and <strong>Mary Swanson</strong>:<br /><br /><strong>Lloyd</strong>: What do you think the chances are of a guy like you and a girl like me... ending up together?<br /><strong>Mary</strong>: Well, Lloyd, that's difficult to say. I mean, we don't really...<br /><strong>Lloyd</strong>: Hit me with it! Just give it to me straight! I came a long way just to see you, Mary. The least you can do is level with me. What are my chances?<br /><strong>Mary</strong>: Not good.<br /><strong>Lloyd</strong>: You mean, not good like one out of a hundred?<br /><strong>Mary</strong>: I'd say more like one out of a million. [pause]<br /><strong>Lloyd</strong>: So you're telling me there's a chance... *YEAH!*<br /><br />Over the next few weeks, I hope to gain back some strength and begin making enough changes in my physical activities that the distance between NHL and <span class="blsp-spelling-error" id="SPELLING_ERROR_3">PMoore</span> becomes an insurmountable gap.<br /><br />Thanks for your continued cheers, positive thoughts and prayers.<br />Hip hip for remission.pmoore66http://www.blogger.com/profile/06239105239416134878noreply@blogger.com10